{"id":20788,"date":"2025-04-08T16:00:29","date_gmt":"2025-04-08T14:00:29","guid":{"rendered":"https:\/\/cienciagandia.webs.upv.es\/?p=20788"},"modified":"2025-04-07T18:24:42","modified_gmt":"2025-04-07T16:24:42","slug":"safor-salut-impulsa-projectes-innovadors-ciencia-ciutadana","status":"publish","type":"post","link":"https:\/\/cienciagandia.webs.upv.es\/ca\/2025\/04\/safor-salut-impulsa-projectes-innovadors-ciencia-ciutadana\/","title":{"rendered":"Safor Salut impulsa projectes innovadors basats en Ci\u00e8ncia Ciutadana"},"content":{"rendered":"

El programa de cooperaci\u00f3 \u201c<\/span><\/span>Safor Salut<\/span><\/span><\/a><\/span>\u201d, iniciativa conjunta entre <\/span><\/span>el Campus de Gandia de la Universitat Polit\u00e8cnica de Val\u00e8ncia<\/span><\/span><\/a><\/span> (UPV)<\/span><\/span><\/a><\/span>, <\/span><\/span>FISABIO<\/span><\/span><\/a><\/span>\u2013<\/span><\/span>Departament de Salut de Gandia,<\/span><\/span><\/a><\/span> FISABIO-<\/a>HACLE La Pedrera<\/a><\/span><\/span><\/span> i la <\/span><\/span>Federaci\u00f3 d’Associacions d’Empresaris de la Safor (FAES)<\/span><\/span><\/a><\/span>, ha organitzat el primer taller de Ci\u00e8ncia Ciutadana incloent-hi associacions de pacients i persones amb fibromi\u00e0lgia.<\/span><\/span><\/p>\n

El dolor cr\u00f2nic associat a fibromi\u00e0lgia constitueix un dels principals reptes sanitaris a nivell global, afectant significativament la vida quotidiana de les persones que ho pateixen i representant un desafiament per al personal sanitari.<\/span><\/span><\/p>\n

En el marc de les iniciatives desenvolupades per Safor Salut, s’ha treballat en la identificaci\u00f3 de necessitats no cobertes i reptes detectats com una via per a impulsar projectes d’innovaci\u00f3 en l’\u00e0mbit de la salut. Aquest enfocament busca donar resposta a desafiaments concrets que impacten directament en la qualitat de vida dels pacients, fomentant la seua participaci\u00f3 des de l’inici en la detecci\u00f3, el disseny i desenvolupament de noves solucions.<\/span><\/span><\/p>\n

\"Fotos<\/p>\n

Malgrat els avan\u00e7os tecnol\u00f2gics i terap\u00e8utics, en l’abordatge de la fibromi\u00e0lgia <\/span><\/span>continuen existint importants llacunes des del diagn\u00f2stic fins al tractament<\/b><\/span><\/span>. Aquesta realitat posa de manifest la necessitat de promoure iniciatives que permeten aprofundir en el coneixement de la malaltia i les seues implicacions, amb l’objectiu de desenvolupar projectes d’investigaci\u00f3 i innovaci\u00f3 orientats a millorar el seu maneig i la qualitat de vida dels i de les pacients.<\/span><\/span><\/p>\n

L’esdeveniment va tenir per objectiu aportar informaci\u00f3 i aprofundir sobre el <\/span><\/span>Patient Journey Map<\/b><\/i><\/span><\/span>,<\/i><\/span><\/span> <\/b>\u00e9s a dir,<\/span><\/span> <\/b>el recorregut des que apareixen els primers s\u00edmptomes de la malaltia fins al diagn\u00f2stic, i durant el tractament del dolor cr\u00f2nic. S’identificaren els punts clau de millora<\/span><\/span> que permeten <\/span><\/span>comprendre en profunditat les experi\u00e8ncies i necessitats <\/b><\/span><\/span>al llarg d’aquest recorregut.<\/span><\/span><\/p>\n

\"Fotos<\/p>\n

El taller ha estat dirigit per personal t\u00e8cnic de Fisabio, Campus de Gandia (UPV) i Faes, i han participat activament presid\u00e8ncies d’associacions de pacients, i professionals de quatre associacions: Associaci\u00f3 de Fibromi\u00e0lgia de la Safor (AFISA), Associaci\u00f3 Fibromi\u00e0lgia i Fatiga Cr\u00f2nica Marina Alta (AFIMA), Associaci\u00f3 d’afectats de fibromi\u00e0lgia i fatiga cr\u00f2nica de la Ribera (ADAFIR) i Associaci\u00f3 de fibromi\u00e0lgia de La Costera (AFILACOS). A m\u00e9s, s’ha comptat amb el suport de personal t\u00e8cnic de la Unitat de Ci\u00e8ncia Oberta de Fisabio.<\/span><\/span><\/p>\n

Cicle de tallers de Ci\u00e8ncia Ciutadana<\/span><\/span><\/p>\n

Els tallers de Ci\u00e8ncia Ciutadana estan especialment enfocats a aquelles idees en qu\u00e8 la <\/span><\/span>ciutadania pot contribuir activament amb la ci\u00e8ncia, ja siga amb el seu esfor\u00e7 intel\u00b7lectual, coneixement de la malaltia i de l’entorn, o amb les seues eines i recursos.<\/b><\/span><\/span><\/p>\n

Es realitzar\u00e0 un cicle de <\/span><\/span>quatre tallers<\/b><\/span><\/span> en el qual es treballaran diferents perspectives.<\/span><\/span><\/p>\n

En el primer taller s’han arreplegat les <\/span><\/span>necessitats i experi\u00e8ncies de les associacions de pacients i els pacients<\/b><\/span><\/span> al llarg del proc\u00e9s de la seua malaltia.<\/span><\/span><\/p>\n

El segon taller explorar\u00e0 la perspectiva de personal sanitari<\/span><\/span> en el diagn\u00f2stic i tractament del dolor cr\u00f2nic.<\/b><\/span><\/span><\/p>\n

En el tercer taller <\/span><\/span>s’analitzaran els punts clau<\/b><\/span><\/span> que hagen sorgit<\/b><\/span><\/span> en els dos tallers previs.<\/span><\/span><\/p>\n

El quart i \u00faltim taller del cicle ser\u00e0 un <\/span><\/span>taller de creativitat orientat a generar de manera col\u00b7laborativa projectes<\/b><\/span><\/span> que responguen a les necessitats identificades en els tallers anteriors.<\/span><\/span><\/p>\n

Al llarg de tot el proc\u00e9s s’analitzar\u00e0 la situaci\u00f3, generant diverg\u00e8ncia i proposant diferents vies de soluci\u00f3, buscant incentivar la proposta de projectes d’investigaci\u00f3 i innovaci\u00f3 cooperatius entre el personal investigador, sanitari, universitari, empreses i professionals, incloent des de l’inici la participaci\u00f3 activa de pacients. <\/span><\/span><\/p>\n

Noves idees i reptes<\/span><\/span><\/strong><\/p>\n

Si tens una idea de projecte i necessites un soci de l’entorn sanitari, universitari, empresarial o social per a dur-lo a terme, introdueix la teua idea en <\/span><\/span>saforsalut.es\/idees-reptes<\/span><\/span><\/a><\/span> i t’ajudarem a trobar-lo. A m\u00e9s, <\/span><\/span>pots veure les idees introdu\u00efdes<\/b><\/span><\/span> i participar activament col\u00b7laborant en la seua posada en marxa.<\/span><\/span><\/p>\n

\n

EQUIP SAFOR SALUT<\/strong><\/p>\n

Campus de Gandia (UPV)<\/a>: Pilar S\u00e1nchez | psanche@upv.es<\/a> Isabel Fambuena | isfammue@upv.es<\/a>
\nFisabio<\/a>: Mar\u00eda Prada | maria.prada@fisabio.es<\/a>, Amparo Arlandis | amparo.arlandis@fisabio.es<\/a>, Amparo Estruch |amparo.estruch@fisabio.es<\/a>
\nEmpresas-FAES<\/a>: Josep Miquel Juan | mjuan@cev.es<\/a> Fina L\u00f3pez | info@faesafor.com<\/a><\/p>\n

\"Colaboradores<\/p>\n","protected":false},"excerpt":{"rendered":"

El programa de cooperaci\u00f3 \u201cSafor Salut\u201d, iniciativa conjunta entre el Campus de Gandia de la Universitat Polit\u00e8cnica de Val\u00e8ncia (UPV), FISABIO\u2013Departament de Salut de Gandia, … Llegir m\u00e9s<\/a><\/p>\n","protected":false},"author":15,"featured_media":20786,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1154],"tags":[706],"class_list":["post-20788","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-safor-salut","tag-destacat-ca","resize-featured-image"],"yoast_head":"\nSafor Salut impulsa projectes innovadors basats en Ci\u00e8ncia Ciutadana - Campus de Gandia Ciencia - UPV Universitat Polit\u00e8cnica de Val\u00e8ncia<\/title>\n<meta name=\"description\" content=\"Safor Salut organitza un taller sobre Ci\u00e8ncia Ciutadana per a associacions de pacients i persones amb fibromi\u00e0lgia.\" \/>\n<meta name=\"robots\" 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